ICTR Informatics Core Services
Eun-Shim Nahm, PhD, RN, Associate Director UMB ICTR Informatics Core, and Daniel Lemkin, MD, Director of Informatics UMB Emergency Medicine, presented at JHU Informatics Grand Rounds "Practical Guides for Making Electronic Health Record Data Actionable for Health Care Research". View their October 25, 2019 presentation and other JHU Informatics Grand Rounds presentations here
The ICTR has partnered with informatics experts across campus to form the ICTR Informatics Core to offer all UMB campus faculty access up to 25 hours of free services to assist the research team in developing REDCap and Qualtrics data capture tools/database and data management, consultation on use of eHealth/mHealth/patient portal interventions, web-based research and usability testing, consultation to determine "best fit" of data projects and, more recently, cybersecurity and artificial Intelligence/machine learning consultation.
The ICTR Informatics Core can provide support with:
ACCESS TO CLINICAL DATA
- The Research HARBOR Data Warehouse consists of clinical and investigational data collected from a variety of data sources from UMMS, Translational Genomics Lab (TGL), iPatient, and other schools/entities across campus. Currently, the main data source is the Clinical Data Repository (CDR), which contains data from UMMC and other UMMS clinical sites. These data have been collated and are maintained as a library to allow researchers to request a broad scope of clinical, scientific, utilization, financial, and resource availability information. Additional data sources will become available within the Research HARBOR over time. IRB approval/determination letter must be provided prior to initiating scope of work.
ACCESS TO NON-EHR DATA
- IQVIA Claims data
- Chronic Conditions Warehouser (CCW) data
- Medicare Current Beneficiary Survey (MCBS) data
CONSULTATION SERVICES ON
- Determining "best fit" of the proposed project and available databases
- Use of digital technology in support of health, such as mobile apps
- Use of eHealth/mHealth/patient portal interventions to promote and manage the health of adults age 50 and older
- Patient-centered PHR/patient portal implementation
- Web-based research and usability testing
- Hospital information systems evaluation and implementation
RESEARCH DATA CAPTURE TOOLS
- The REDCap team can help build a database for your project in REDCap. Please be prepared to provide your current, IRB-approved research surveys, data entry /case report forms, and your project's data collection schedule. Sample data collection forms. Data collected are stored and maintained locally on campus in a firewalled server managed by the UMB Clinical and Translational Research Informatics Center (CTRIC). REDCap provides automated export procedures for seamless data downloads to Excel, PDF, and common statistical packages (SPSS, SAS, Stata, R) as well as a built-in project calendar, a scheduling module, ad hoc reporting tools, and advanced features, such as auto-validation, branching logic, file uploading, calculated fields, and survey stop actions. REDCap can be set up for multi-center studies as well.
- Qualtrics - If you need a simple Q&A survey, consider Qualtrics
- Electronic data capture forms, consider OpenText TeleForm
New! UMBC Cybersecurity and Artificial Intelligence - ICTR Core
UMBC will provide a new Cybersecurity and Artificial Intelligence (AI) Core to the UMB ICTR Informatics Core. In turn, UMBC faculty will become eligible for many of the existing resources offered by the ICTR to UMB researchers who are currently preparing or executing clinical translational research. The new UMBC services will be an exciting addition for those researchers exploring the use of machine learning (ML) and AI to identify patterns in data and make decisions with minimal human intervention. For researchers interested in developing apps and devices that may improve delivery and exchange of health information, UMBC's Cybersecurity expertise will help the researcher protect those devices, systems, and data from attack. See below for a list of UMBC Core services available to UMB researchers.
UMBC - ICTR Core Capabilities
- Securing medical devices
- Securing smart systems, e.g., smart surgery rooms
- Protecting learned/predictive models from attacks
- Deep learning and artificial neural networks
- Natural language processing
- Graph analytics
- Time series analytics
- Data visualization augmented reality and virtual reality
UMBC - ICTR Core Example of Services:
- Consult to uncover possible cybersecurity risks associated with devices and/or systems.
- Consult on ways to protect devices and/or systems from attackers, either at design time or after deployment.
- Consult on ways to apply artificial intelligence and machine learning to solve specific problems given existing data, including processing pipelines, specific algorithms, and evaluation methodology
- Advise on what additional data could be collected or obtained to potentially improve the utility of AI/ML for specific use cases.
- Construct simple proof-of-concept AI/ML systems to understand what level of performance might be achieved with more time, data, or resources
- Advise on the best visual representations to explore complex datasets and to communicate results to others.
How to Apply for ICTR Resources
Use your UMID to log in to the ICTR Resource Request webpage to access the link to the application (developed in REDCap).
PLEASE NOTE! You must be ready to use any service you select on the request form. Services cannot be encumbered for future use.
For questions, please email ICTR-Navigator@umaryland.edu.
More About ICTR Informatics Core Partnerships
Clinical and Translational Research Informatics Center (CTRIC) can construct databases in a variety of different formats (MySQL, PostGreSQL, Microsoft Access, etc.) based on the needs of your study. CTRIC also offers secure, HIPAA-compliant storage if you choose to house your database on its server. CTRIC can quickly and easily access your study’s database and make any requested edits as necessary and create tables of specific data in any readable format at your request. CTRIC also can:
- Develop a Research Database with OpenText Teleforms. With the help of OpenText TeleForm designing software, the UMB Clinical and Translational Research Informatics Center (CTRIC) offers researchers custom-designed forms and data dictionaries. Data collected on these forms can be scanned into the TeleForm system to be read by its character recognition software. TeleForm increases efficiency and accuracy in the data entry process. Data can be exported to datasets in many different formats (SAS, SPSS, Excel, Access, and more).
- Construct Custom Databases. The UMB Clinical and Translational Research Informatics Center (CTRIC) can organize all of your study data into a cohesive, easy-to-use database. Databases can be constructed in a variety of different formats (MySQL, PostGreSQL, Microsoft Access, etc.) based on the needs of your study. Secure, HIPAA-compliant storage also is available.
Research HARBOR Data Warehouse: Research HARBOR Data Warehouse consists of clinical and investigational data collected from a variety of data sources from University of Maryland Medical System (UMMS), Translational Genomics Lab (TGL), COMmunity Partners Advancing Science System (COMPASS), and iPatient. Currently, the main data source is the Clinical Data Repository (CDR), which contains data from UMMC and other UMMS clinical sites. Additional data sources will be integrated in the HARBOR over time. At the HARBOR website, select Request for Data or Service and log in using your MYUMB ID.
Other UMB Campus Shared Informatics Resources
UMB faculty needing the UMB Core services below may be eligible for additional support through the ICTR Voucher (micro grant) Program.
Bioinformation Program: The UMB Health Sciences and Human Services Library Research Connection program offers expertise, information resources, and training focused on bioinformatics and computational biology for health science research and practice. The bioinformationist is available for one-on-one or group consults in the library or in the lab.
Center for Health-related Informatics and Bioimaging (CHIB): One of the MPowering the State initiatives, CHIB combines "big data" computing capabilities to manage, process, and analyze massive amounts of clinical, genetic, and diagnostic imaging data. CHIB matches advanced computing resources at the University of Maryland, College Park (UMCP) with clinical data and biomedical expertise at the University of Maryland, Baltimore (UMB).
Institute for Genome Sciences (IGS) Informatics Resource Center (IRC): The IRC supports bioinformatics activities by providing annotation and analysis of genomic data for internal and external projects, using state-of-the-art computational infrastructure.
The Pharmaceutical Health Services Research (PHSR) Center at the University of Maryland School of Pharmacy provides UMB faculty, postdoctoral fellows, graduate students, and other researchers customized SAS programming, data cleaning, and file preparation workshops. Our team can assist researchers from all health disciplines. For more information, contact 410-706-5315 or firstname.lastname@example.org.
The Pharmaceutical Research Computing (PRC) service center in the Department of Pharmaceutical Health Services Research at the University of Maryland School of Pharmacy has been providing a wide range of services to UMB campus investigators for more than 15 years. Services include analytics (discovery, interpretation, and communication of meaningful patterns in data), SAS programing, data management, statistics, and epidemiology to support health services researchers. The PRC can assist with obtaining data from outside sources, such as CMS, DHMH, and UMBC, and secure Memorandums of Understanding or Data Use Agreements as well as assist investigators in obtaining IRB approval.