Breakthroughs Can’t Wait: What if Caring for Seriously Ill Children Meant Supporting Their Entire Family?
Nearly 200,000 children and adolescents in the United States have a brother or sister with a life-limiting illness. These siblings of seriously ill children not only lose the companionship of a close friend when their sibling is hospitalized or dies, but they also face disruptions in their bond with parents whose attention is pulled away for caregiving.
Knowing this, Kim Mooney-Doyle, PhD, RN, CPNP-AC, FAAN, associate professor at the University of Maryland School of Nursing, is examining how families communicate — and what siblings and parents say they need — in order to build family-based interventions that alleviate the risks siblings of seriously ill children face.
Learn more about how Mooney-Doyle is working to build family-based interventions for siblings of seriously ill children and see other inspiring stories that demonstrate why research matters.